Speechless
I have no words. I once read t his story in the New Vision , and I heard a call to make a social action documentary, about how the government of Uganda ignores certain diseases, and focuses on diseases that donors say it should focus on. They pour money into TB, AIDS, Malaria, and now on maternal health - and yet being pregnant is not even a disease! It's 100% natural, but (okay, that's for another story) - there are sicknesses that are killing Ugandans, and no one is doing anything about it. Like DMD, duchenne muscular dystrophy, a terrible killer. It's sad to see a young life wasted, reduced to waiting for the grim reaper. I visited this family in Wakiso district, and spent a day with them. I am hoping to convince a physiotherapist to visit the family and train them on how to care for their sick children, but this case makes me speechless. I do not know if I have the heart to make this film. Three children have already died in the family. One boy is suffering from advance...